This story is intended to be an out of the box look at Parkinson’s disease, and how family members and victims live with it and deal with the fact that there is no cure. It was inspired by one little aspect of my life that I’ll mention here now.
It never fails to happen that when my mother and I watch a Michael J. Fox film, one or the other of us will mention how adorable and cute he is, followed directly by one or the other of us mentioning just how sad it is that he has Parkinson’s. Never Fails. Ever. Which is why I wrote this piece. Enjoy. Be aware.
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A Letter to Michael J. Fox
Crayons rolled on the floor. Paper rustled. A small quiet tune escaped the little girls lips as she lay on her kitchen floor, crayon in hand, trying hard to make her handwriting just perfect. She was almost seven, but still loved crayons; the bright colors were happier than the blackish-gray of the lead pencil or the permanent blue ink of her new pen. A photo of her grandfather lay on the ground next to her, watching her as she worked. Two sheets of wide lined cursive training paper later Morgan had finished her very first official letter. It read:
Dear Mr. Fox,
I’m righting you my very first letter. I want to send it to you because of my Granddaddy. Mommy told me that he’s sick, and won’t get better. Mommy said that he warn’t the only one, she said you were sick like my Granddaddy too. Mommy said that you were helping people who were sick like you. (Do you have to stay home from school everyday?) I just was wondering if you could make him better. I hope the pretty rainbow colors make you feel better too. Sorry for doing blue again, it’s my most favorite color.
Lots of hugs,
Morgan Sylvia Saur
P.S. My Granddaddy’s name is Roy
Getting a plain white envelope, Morgan slide the clumsily folded letter into it, licking the flap sealed and pressing it down securely to be sure. On went her rain boots and her light spring jacket with the rain hood. It had started raining some time ago and the little girl pulled her hood over her long brown pigtails, the all important envelope hid safely in her jacket to keep it dry. The post office was two blocks down from her Milwaukee home, so the little girl skipped through the puddles to make her short journey more enjoyable. Morgan had been to the post office before, with her Mommy and her Daddy a couple times, but never had she ever sent her very own letter.
When she got into the tiny foyer before the mail desk she shook off throrouly, spraying rain drops everywhere, before entering. She used both hands to push the door open, then skipped into the main office. Her head barely reached the top of the desk’s counter.
“’Scuse me, mister,” she said in her little tomboy voice. “I got a letter to mail, my first one!”
The man at the counter looked down at her, while Morgan looked up at him. “Your first letter, huh? So who’s it too?” he asked grabbing a pen as she slid the unaddressed letter onto the counter.
“Mister Michael J. Fox,” she said slightly as she stood on tiptoe to watch the Clerk fill out the address. He paused when she said the name, but wrote it on anyhow. He stopped there, looking at the little girl through squinted eyes.
“Why’re you sending Mister Fox a letter?”
“He’s going to help my Granddaddy. They’re both sick, and my Mommy says that Mister Fox helps people who’re sick like my Granddaddy,”
The clerk didn’t have the heart to turn the little girl down so he smiled at her, “Allrighty then, I promise that we’ll send it out right away, miss,”
“Thank you, Mister, You’re sure he’ll get it?” Morgan asked anxiously.
“I promise, he’ll get it, don’t you worry sweetie, he’ll get it,”
~
Dear Mr. Michael J. Fox,
When I was almost seven my Grandfather was diagnosed with Parkinson’s disease. My Mother had told me that you, too, had the disease, and that you were fighting for research rights and trying to find a cure. I then wrote you a letter, in crayon, hoping that you would help my Grandfather to get better. I was naïve, and innocent. I know now that you never got that letter, that the Postal clerk was just being nice to a desperate little girl. Hopefully this one will reach you, because you have touched me. Not a day goes by that I don’t think about Parkinson’s, it has become such a big part of my life. All I can say is thank you for all that you have done in the research branch of your foundation. It means more than you can ever imagine
As before lots of hugs.
Sincerely,
Morgan Sylvia Saur~Parker
I held the letter in my shaking right hand, shaking because of the disease. I may have touched her, God knows how, but her letter didn’t just reach me, it truly, truly touched me. I only wish that I could have done more.
Right now I’m close to wondering if the clerk kept the letter, I’d like to have read it, I can only imagine how the page would look. The writing that of a young child, the pages bright with her crayons in newly learnt cursive.
I loved watching my kids grow up, but just that letter would have shown me what it was like for this young woman to watch her beloved Grandfather live with Parkinson’s. It would be insight into the minds of my own children. That gift would be so precious, to see life through the eyes of a child is priceless.
What I wouldn’t give to know what that letter said.
Next thing I knew, I was writing her back. And I can’t help but wonder if she ever had any hope of knowing that her letter had reached me. And I smile. Whether she had or not doesn’t matter any longer. Because now, no matter what, she will.
The letter that she had sent me as a child could have said a million different things, a million and one for all I care. I haven’t ever seen it, and probably never will, but it still told me at least on thing.
Persevere.
I can. I must. And, I will.
Not because I have to, but because it’s the right thing to do. And now, I want it more than ever.
As I sign my name at the bottom of the letter, I can’t help but wonder what it is that I wrote, I can’t even remember, but I know that whatever it is, she’ll know that I care.
I look down and read:
Dearest Morgan,
Thank you for writing that letter, so long ago. I may never have gotten it, but I know what it said. It told me to persevere. I promise, I will. The world through the eyes of an innocent, such as a child, is a world seen purely.
God bless,
Michael J. Fox
It’s short, sure, but I don’t need to say any more. My heart says it all.
~Finne~
I added this afterwards as an afterward or epilogue thingy. So here’s the ending.
The Last Letter
There was no return address on the envelope, the handwriting was shaky and uneven, however, but written with time and care. The message, no matter its length, was a welcome surprise to the young woman, and it was signed in tight, small script:
Michael J. Fox
After that day, she always kept the letter with her, but curiously never showed it to anyone, nor told anyone about the two previous letters. Not till the day that her Granddaddy went to the hospital. That day, in his room, she pulled the letter from her purse and read it aloud to him, giving him hope with every letter off the page.
Someday, Morgan knew that she would write one last letter to Mr. Fox, but hopefully that day would be long in coming.
Sadly it was not.
~
Dear Mr. Fox
This will be the last letter you will receive from me. My Grandfather has died, age Nintey~Two. He battled hard and long against the inabilities Parkinson’s gave him, but he has finally gone to rest, in hope of rising again, clean and pure of disease and ailment. I do hope that you are well, and shall miss writing to you. Will never forget the letter. I believe I cried.
However, It’s time for our letters to end.
As before, lots of Hugs,
Sincerely,
Morgan Sylvia Saur~Parker
Milwaukee, Wisconsin. The Beer Capital of America. Germany’s second Fatherland. Two blocks down was an old Post Office. There were certainly lots of them in Milwaukee. This was the last one I had to check.
“Excuse me Sir, did a little girl of about six come in here some years ago with a letter for a Mister Michael J. Fox?”
The Clerk looked up at me. “Hold on a sec, young man,” she went into the back and called for another of the Clerks, an older man, who looked as if he’d been there for a long enough time.
“Don, this man is lookin for a letter for a Mister Michael J. Fox, brought here some time ago by a six year old girl, ya seen it?”
Donny nodded, and the other clerk left.
“You’re Michael J. Fox,”
“Yeah, do you have it?”
“I couldn’t have ever broke that little girls heart, looks like I don’t have to no more,” Donny dug unto a drawer towards the left end of the desk, and pulled out a slightly yellowed envelope with the name Mr. Michael J. Fox written in hurried hand on it’s front and handed it to me
“Thank you,”
I sat down in one of the chairs at the front, hands again shaking from lack of medicine. I opened it with gentle hands and slid the letter slowly from the broken seal.
Dear Mr. Fox,
It was golden, the view of the world from a child’s perspective. Innocence was far beyond treasure, it was priceless.
My Dearest little friend, Morgan,
To view the world from your eyes is something I will never forget. In this last letter of our correspondence, I wish y0u long and happy life, blessing on your dead Grandfather, and your beloved Mother, as well as those who taught you to write cursive so well. I mourn your losses, as I mourn my own. We are no longer innocents in this life. We no longer see as the ignorant of the ways or the small child sees. But to remember what it is like through the words of a child’s letter, and forever preserve a bit of that innocence, is like Heaven in a world of Hell. My greatness and thanks to you. This is the last letter.
Condolences for your grievances, and God Bless
Michael J. Fox
I sent it, still with no return address, wrote the place name with care, and sent it lovingly, both letters, envelopes and all. That would end it.
I would miss my little letter of insight, but it belonged with her. She was still young enough to change. I couldn’t, and never would. I didn’t have to. I have a different place in this world. No matter how old I get, no matter how ill, I am immortalized in the minds and hearts of those who see my films, hear my story.
My job is to show people, not tell them. My job is to make them aware. Morgan’s job was to show me just how much doing my job meant to the rest of the world. Morgan’s job was to make sure that I did mine. My job is to persevere. My mission is to make people aware.
My hands are shaking again.
~Finne~